FOR IMMEDIATE RELEASE:
powerHouse Books is pleased to announce the October 2017 release of
An Ordinary Day:
Kids with Rare Genetic Conditions
By Karen Haberberg
An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. One in ten Americans are living with a rare genetic condition. The lives of these families are ruled by conditions that are often overlooked by society, but for millions of people they are a priority. This book sheds an important and compassionate light on this existence.
Life can present challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and willpower we can find inspiration and hope. An Ordinary Day features unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions.
Readers will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal seven-year-old who learns to sign to communicate his needs, five-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a nine-year-old boy who finally learns to eat with a spoon after many failed efforts. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions.
The everyday moments captured in An Ordinary Day inspire awareness and empathy, while highlighting the commonalities between us all. Poignant and revelatory, An Ordinary Day illuminates what it means to be a family.
Karen Haberberg is a New York City-based portrait photographer. Her photography has been shown in numerous gallery exhibitions, magazines, and newspapers including The New York Times, Wall Street Journal, The Daily News, Huffington Post, Time Out NY, Daily Mail, Cosmopolitan, New York Family, and Fit Pregnancy. Her work was recently featured on ABC News and NY1. In addition to her freelance photography work, Haberberg teaches photography at the 92Y and JCC of Manhattan. For nearly a decade, she served as the Director of Photography and Digital Media at the Jewish Community Center in Manhattan, where she spearheaded photography related programming for children and adults. Haberberg has also curated numerous exhibitions and collaborated with well-known photographers such as Annie Leibovitz, Elliot Erwitt, Joyce Tenneson, Gillian Laub, and Bruce Davidson, among others. Haberberg holds a BA from Brandeis University and earned her MA in Art and Photography from the ICP. She lives in Manhattan with her husband and two children Maya and Liam. For more information, visit Karen's website at http://www.karenhaberberg.com.
A partial preview is available by clicking here: An Ordinary Day
Genetic Conditions / Family Relationships / Children
Hardcover, 12 x 9 inches, 176 pages
ISBN: 978-1-57687-861-3, $45.00 US/CAN
High-res scans to your specification are available upon request; scanning from the book or lifting images from the mechanical file are strictly prohibited. Mandatory credit line: From An Ordinary Day by Karen Haberberg, published by powerHouse Books.
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